Saturday, April 15, 2006

Egg Hunt

Our wonderful neighborhood association holds an Easter egg hunt each year. This year Annie and the girls even got to help clean up the park and hide the treats beforehand. There were many wonderful goodies to be found. Kerstin even found a numbered egg that meant she won a HUGE Easter basket. McKinsey won a cute butterfly. There were only a few raindrops before the hunt began, otherwise it was a beautiful morning! Posted by Picasa

Friday, April 14, 2006

Feeling Better

Kerstin's runny nose has seemed to clear up. She went back to school yesterday, but experienced several headaches during the day. They don't seem to be as severe as she has experienced, but it would still be nice not to have them at all. The kids have the day off from school (Good Friday) and it looks like the weather is going to be great. I have a feeling we will be spending a lot of time outside today.

We hope you all have a great Easter weekend.

Wednesday, April 12, 2006

Runny Nose

Kerstin stayed home from school today because of a runny nose. No fever, or headache, or stomach ache, just a lot of green stuff coming out. So far, her new ATRA dose seems to be working without giving her some of the problems she has been having in the past few weeks. It's always a bummer to have a head cold with such nice weather.

Sunday, April 09, 2006

Spring Cleaning


Kerstin and McKinsey and I (Annie) spent the rest of the afternoon today working outside. The weather was beautiful! The girls decided it was time to clean out the play house. They swept and mopped and filled 2 bags of trash. They also rearranged the play house and had me move in their portable chalkboard. The play house has not been transformed into a one room school! What fun! Kerstin felt great all day! We pray that this will continue all week long! Have a blessed week!

Bowling


Kerstin, McKinsey and Annie were able to spend a few hours this afternoon bowling with the Lincoln Candlelighters. This group is for families of children with cancer or other serious diseases. We haven't been able to get to a monthly meeting since December, so it was nice to be able to go today and have a fun time!

Saturday, April 08, 2006

A Day in Omaha

We were able to spend the day in Omaha today as a family. We ate lunch with some great friends at our favorite Omaha pizza place, Zios! Then we headed over to Children's Hospital with a wagon full of gifts for the 6th floor playroom. Kerstin and McKinsey asked their friends to donate a gift to the hospital at their recent birthday party. Stacy, the child life specialist, was thrilled with all the goodies for the patients.

We were also able to meet up with some other Omaha chums for some kid playtime and adult chit chat.

We finished off the day with a family card party in Lincoln. What a great day of socializing! We are blessed to have such wonderful friends!

Thanks so much for checking on us. Keep Kerstin in your prayers this week as she has to take her Atra meds again. We are hoping that a change in dosage will help the nausea. We do have some new nausea medicine as a back-up plan. God's blessings to you!

Monday, April 03, 2006

No Cavities

Kerstin had her 6 month dental check up this morning, and she remains a part of the "no cavity club".

Headache update: Kerstin's headaches finally went away over the weekend. We are hoping next week when she goes back on the ATRA, the reduced dose will help keep the headaches away.

Thanks for checking in, and we hope you all have a good week.

Friday, March 31, 2006

Doctor's Appointment

Kerstin had her scheduled doctor's appointment yesterday at St. E's in Lincoln. As a bonus, we also ran in to Lauren and her dad there as well. Kerstin's counts are holding steady at 1318. Our biggest concern are the increased headaches she has been having. After some discussion, we have decided that she will skip the rest of the ATRA for this week, and when her next ATRA week comes we are going to reduce the dose. The Zofran has worked great on the nausea, but the headaches it gives her are terrible. An alternate medication we talked about is Anzemet. According to the literature it appears to have about the same incident of headaches as the Zofran. If anyone has any experience with the Anzemet, we would love to hear from you. In the mean time if we need something for the nausea, we'll go with the Phenergan. On the bright side, Kerstin's headaches have begun to fade since she stopped taking the Zofran and ATRA.

We hope everyone has a great weekend. Take care and thank you for the prayers.

Wednesday, March 29, 2006

Feeling crummy again

Just wanted to give a quick update. Kerstin is on her "tough" medication week. She has had a headache since Monday that just won't go away. She has even asked for Tylenol, which we have been giving her, but it doesn't seem to help. Yesterday she slept in until 9:30 and then took naps at 11:15 and after school. She didn't sleep well last night (maybe too much naps???), continuing to complain of a headache. This morning she still had a headache, so I didn't give her any morning meds. She barely ate anything and even threw up this morning. She also said that things were kind of blurry. When she laid on the floor while we were playing Barbies, I knew that she just wasn't feeling well. She ended up sleeping for a couple of hours this afternoon which seemed to help a little bit.

Jeff is working today, but Annie was able to stay home with Kerstin and even called the clinic. Dr. G recommended skipping some of her meds today and making sure she gets lots of rest. We have an appointment to see him at St. E's in the morning (it was our previously scheduled appointment anyway). He plans to give her a check up including looking at her eyes. Thanks for checking on us and for your continued prayers. We know that days like today are just little bumps in the road. Thanks also for your prayers for our friends Abby, Hannah, Mary, Elissa, and many others.

Monday, March 27, 2006

RSS Feed

Now you can follow Kerstin using an RSS feed. To find out more, click on the "Helping Kerstin" link on the left side of this site. Next, click on the "RSS Feed" link on the left side. That will take you to a page with more information. Thanks.

Saturday, March 25, 2006

Team In Training

Saturday morning Kerstin got to meet about 30 of the Team In Training athletes before one of their training rides. The Omaha team (pictured) presented Kerstin with a teddy bear and a t-shirt. Kerstin brought some granola bars to pass out to the athletes. It was a great opportunity for the athletes and Kerstin to meet each other. For more pictures, click on the title "Team In Training."

Friday, March 24, 2006

Back Home

No exciting pictures for this post. (Unless you wanted to see the piles of dirty laundry from the trip.) We made it back home this afternoon. Kerstin is feeling pretty good. We had our fingers crossed the whole trip hoping that she would stay healthy. It was also nice Kerstin had her "easy" medicine week while we were on the road. We're hoping our new game plan for the "hard" medicine week works next week to keep her from getting sick to her stomach.

Thanks for the prayers, and please keep all those who couldn't enjoy spring break away from the hospital/clinic in your prayers as well.

Thursday, March 23, 2006

Ice Skating

Kerstin and her sister got to strap on ice skates for the first time today. Both of the girls have been roller skating before, but they soon found out it's a lot different on the ice. We only lasted for about 45 minutes (which was long enough). The rest of the day was spent napping, going to the IKEA store, eating, and swimming. Tomorrow it's back to Nebraska.

Wednesday, March 22, 2006

Dinosaurs


After looking at all the fish, we went to the dinosaur exhibit. Kerstin's sister is studying dinosaurs in school right now so it was an excellent learning experience. (As well as a chance to sit down and relax.) Click on the title "Dinosaurs" for more pictures.

Aquarium

We visited the aquarium that is under the Mall of America. We even got to see them release a new sand tiger shark in to the shark tank with the rest of the fish. (Click on the title "Aquarium" for more pictures.)

Tuesday, March 21, 2006

Easter Bunny


The Easter Bunny even made it to Minnesota.

Flower Show


We took the "light rail" train to downtown Minneapolis just to check things out. While we were there we went to Marshall Fields to see the infamous flower show. (Click on the title "Flower Show" to see more pictures.)

Meeting Friends for Lunch

Tuesday we met Rose and Alex Bouvier for lunch at the Rain Forest Cafe in the Mall of America. It was a fun lunch and we were all glad not to be back in Nebraska scooping snow.

Monday, March 20, 2006

Mall of America


We spent the day (and I mean all day) at the Mall of America riding all the rides at what used to be "Camp Snoopy". Kerstin and her sister had a really great time. They should sleep really good tonight. :) Click on the title "Mall of America" for more pictures.

Sunday, March 19, 2006

Back in the Water


This is the first time that Kerstin has been back in a swimming pool since she was diagnosed in October. In addition to getting the ok from her doctor to travel, he gave her the ok to use swimming pools again.

Birthday Party in MN


We visited some friends that live just east of the Twin Cities metroplex. In addition to a great supper, they had an impromptu birthday party for the girls.

Thursday, March 16, 2006

Sick Again

Kerstin got nauseated today and vomited several times, so she missed another day of school. We can kind of see a pattern now with her medications and her getting sick. One of the meds she takes only every other week, and it seems about half way through that week she starts to get sick to her stomach. We called the clinic and talked it over. The called in a prescription of Zofran to the pharmacy. That seems to be the trick. Kerstin will now take the Zofran during her every other week of ATRA.

After the Zofran, a really long nap, and some supper, she was even feeling good enough to go to the ballet (Snow White) for which we had tickets for.

Wednesday, March 15, 2006

Fairies for Friends

We wanted to let you know about a wonderful opportunity our friend, Abby, is offering. For a donation of $5 or more, you can get your very own hand-made fairy. Abby, who is being treated for Leukemia at Children's Hospital, is making the fairies as a fundraiser for In the Arms of Friends. This brave 8-year-old is using her time stuck indoors with very low counts to benefit a wonderful organization. In the Arms of Friends provides all families of children with cancer a wonderful bag of items immediately upon diagnosis. The items include a treatment journal to keep track of all the mountains of paperwork you receive, gift cards, a disposable camera, a stuffed pet, and much more. This group also provided snacks for families at the Oncology clinic and much, much more. You can visit their website at www.inthearmsoffriends.org to find out more.

In order to get your own gorgeous fairy, go to Abby's website at www.caringbridge.org/visit/abbybridgewater and follow the directions. Tell them that Kerstin sent you. We are so proud of Abby and her mom, Kristi, for being so generous and giving. What an example they are for us all! Abby had hoped to raise $500. So far they have collected an amazing $1,825!!!

Thanks for checking on us! Have a blessed day!

Sunday, March 12, 2006

Birthday Party


Kerstin and her sister had a combined birthday party this year, and this year they decided they wanted to have a movie theater party. They each got to invite five friends. The girls had ice cream and Barbie cake, opened presents, got a tour of the theater projection room, and then watched the movie "The Shaggy Dog". In addition to personal presents, each girl brought something to donate to the Children's Hospital arts and crafts room. (Thank you again everyone.)

Unfortunately, one of the invited girls was unable to make it to the party. Abby's (http://www.caringbridge.org/visit/abbybridgewater) counts were not high enough for her to be able to join us at the theater. However, we were able to meet up with her and her mom for a quick present exchange while they were on their way back to Omaha.

To see all of the pictures from the day, click on the title "Birthday Party".

Thursday, March 09, 2006

Uncle Phil's Diner

The youth at our church are doing a fundraiser this weekend called "Uncle Phil's Diner". Annie and 3 other gals get to sing a song as a part of the dinner theater. Kerstin, McKinsey and Annie had a blast dressing up in 50's costumes for the event. What a wonderful opportunity to wear those Halloween costumes from 2 years ago. Kerstin and McKinsey are quite the dancers! They even did the Hokey Pokey! It was a fun evening, and the girls are looking forward to bringing their uncle and cousin to the show tomorrow night. They are trying to talk Mom into bringing them every night. Is it the dancing, the sloppy joes, or the root beer floats??

Thanks for checking on us! Have a wonderful weekend!

Wednesday, March 08, 2006

Hair


Kerstin's hair is really starting to come back in. Not quite enough to use any hair accessories, but it's getting there.

Sunday, March 05, 2006

Feeling better

We just wanted to let everyone know that Kerstin has felt much better the last two days. We are not sure whether she caught some sort of "bug" or whether it was the side effects of her medicines that were making her feel yucky. We will start her back on her meds tomorrow and hope for the best. We had a nice weekend hanging out a home. Annie and the girls even did a little bit of clothes shopping on Saturday. All of McKinsey's jeans have holes in the knees. I guess that is the new style??? Kerstin is looking forward to going back to school and gymnastics tomorrow. Thanks for your positive thoughts and prayers.

Friday, March 03, 2006

Home Sick Again

Kerstin stayed home sick again today. She was lethargic, no appetite, and just didn't look good. The about mid-morning she got sick to her stomach. She was not happy about missing another day of school, but we knew we had to keep her home. We contacted the clinic about her nausea (and four day headache). They advised us to take her off her meds for a few days to see if that helps. It all seems like trial and error. After a long nap she seemed to feel a lot better. She even ate TWO pieces of pizza for supper and looks to have plenty of energy. We're ready for the weekend and some R and R.

Wednesday, March 01, 2006

Just A Reminder

We've been having beautiful weather the past couple of days, so the kids have been spending a lot of time outside playing. Kerstin, of course, has to keep up with everyone else. After going to the park with Annie and playing with Jeff in the back yard this morning, Kerstin started complaining of a stomach ache, and she looked wiped out. She didn't have any appetite and really didn't seem herself. We ended up keeping her home from kindergarten where she slept most of the afternoon. Even though she is looking like any other cancer-free six year old (minus some hair), I guess it's just a reminder of the disease and chemo that is going on inside of her. No complaints though. We still count our blessings everyday.

Tuesday, February 28, 2006

Kerstin is 6!

It was a fun and busy day for the Leaf family! Kerstin turned 6 today! Actually, she isn't officially 6 until 11:58 tonight. She was 2 minutes away from being a Leap Year baby.

Annie made Kerstin a Barbie doll cake. Thanks for the idea, Sharon! She made one for McKinsey on her 4th birthday. Now she remembers why she waited 5 years to make another one! All I can say is you need LOTS of frosting! Kerstin and McKinsey were very pleased with how it turned out. We had cake tonight for our bedtime snack. Yummy!

Kerstin got to visit her friends at Annette's house this morning. We brought doughnuts to help celebrate. It was fun to see all the kids having a ball together again. Kerstin especially liked holding baby Porter. She loves babies. She told me that she likes babies the best when they are "real." She even got to feed him a bottle. I am sure he was ready for a nice nap by the time we left.


Of course birthdays are extra special when you are a kindergartener. Her friends made her a birthday book and she got to wear a birthday hat and sticker all day.

Kerstin opened a few gifts tonight. Her favorite was a toy electric guitar from her sister and parents. It even came with a built-in microphone. We were treated with quite a concert tonight. I am sure that there will be many more to come. Tickets anyone???

We can certainly count our blessings today and every day. Thank you, Lord, for the opportunity to celebrate the big and little things in life.

Sunday, February 26, 2006

Wonderful Weekend

We have had lots of company lately, and we are loving it! Annie's cousin, Todd, got married at Sheridan this weekend. Uncle Brian, Brenna, Grandma Clarice and Grandpa Gene were able to come and stay at our house. We also got to chat with many other aunts, uncles, and cousins at the wedding. It was so nice to see everyone. Best wishes to the happy couple.

Brenna, and the girls got in quite a bit of play time in the new basement this weekend. They played house, polly pockets and prom (Yep, prom is a new one for me, too. It involves pretty dresses and Uncle Brian with a bow tie). Kerstin continues to feel great. She went in for lab work and a check up on Thursday. Her ANC is over 1,200 and everything looks great. Dr. G is very pleased with her progress, and we are too! She is taking her meds like a pro. Kerstin is also very excited for her big 6th birthday on Tuesday! Thanks for checking in on us and have a blessed week!

Tuesday, February 21, 2006

Early Birthday

Kerstin's grandparents from Colorado will not be able to come back for Kerstin's "birth day", so they held an early party for her complete with presents and an ice cream cake.

Monday, February 20, 2006

Fever...

Dance fever that is. Grandma and Grandpa from the mountains showed up Sunday evening to stay for a few days. The girls were very excited to have a new audience for their dance routines. The grandparents got quite a show.

Kerstin continues to stay healthy. We still get very nervous when someone coughs or sneezes around her. Her doctor has also cleared her to travel, so we are trying to make plans for spring break in March.

As Kerstin remains healthy, are thoughts and prayers are with all of our new friends who are fighting secondary illnesses in addition to their primary cancers. Please say a special prayer for them and all those who need the extra attention.

Thanks for checking in on us and we hope you have a blessed week.

Uncle Brian

Things kind of slowed down after Valentine's Day. The weather got really cold (single digits and below zero), so we basically just hibernated when the girls weren't in school.

Saturday Kerstin had the idea of going out to breakfast, so we bundled everyone up and headed to Perkins for "brunch". We braved the cold weather and the crowds and did some shopping after we ate. That afternoon Kerstin's Uncle Brian stopped by to play. He was actually in town to see his girlfriend, but knew he would be in trouble with the girls if he didn't come see them. They had a fun time using Uncle Brian as an indoor gymnasium.

Wednesday, February 15, 2006

Valentines Day

Kerstin had a great time at her Kindergarten Valentine's Day party. Her dad was also able to be at the party to help with the kids and read a story. See more pictures by clicking on the title "Valentines Day".

Tuesday, February 14, 2006

Spinoza Bear

Kerstin received a Spinoza Bear over the weekend. This is a great addition to her collection because this bear actually has a tape player built in and comes with several Spinoza audio tapes. She can also play regular music tapes in it as well. Thanks again Faye. If you would like more information on the Spinoza Bear, go to www.spinozabear.com .

Back to Gymnastics

Kerstin was thrilled to go back to gymnastics on Monday. It's great to see her getting back to a lot of her old activities. See more pictures of gymnastics by clicking on the title "Back to Gymnastics".

Sunday, February 12, 2006

Visitors

We had visitors from the west today (Aurora, NE). Jeff's Aunt Shirley and Cousin Crystal made Kerstin and her sister each a blanket. Also pictured is Crysta's son Brian. Not pictured is Jeff's Uncle Max and Crystal's husband Jason. It was a very nice visit with some relatives that we haven't seen for quite a while.

Thursday, February 09, 2006

Brownie Fun


McKinsey's Brownie troop got to celebrate a successful cookie sale by going to Paint Yourself Silly today. Kerstin and Annie got to got along to help supervise. This is a wonderful and generous troop. This group of girls sold popcorn for Kerstin a few months ago. We want to say a big "Thank you" to them for their kindness and generosity.

Kerstin continues to feel well and has been having a great time at school. She got to go to the lab at St. E's today for a finger poke(not fun in her book). Her ANC is 1558, right where they want it to be. Her hemoglobin and platelets were just fine, too. She will be able to continue with the same doses of her medicines she is currently taking.

Kerstin's friend, Abby is out of the hospital, but now has RSV. Another friend of ours from Children's, Hannah, is having surgery tomorrow to rid her body of her tumor. They are two very special little girls. Please add them to your prayers and visit their websites if you can. Tell them Kerstin sent you. www.caringbridge.org/visit/hannahknudsen and www.caringbridge.org/visit/abbybridgewater . Thanks for your words of hope and encouragment. Posted by Picasa

Sunday, February 05, 2006

Super Sunday!



Today was a Super Fun day (not just because of the football game!) Kerstin, McKinsey, and Annie got to go to Omaha for Abby's birthday party at Build-A-Bear. It was fun to see Hannah, Elissa, and Emma, too. It took Kerstin a while to get rid of a case of the "shy's", but we all had a very nice time. Thank you Bridgewaters, and Happy Birthday, Abby!

We were also able to visit our friends the Holsteins while we were in Omaha. Joshua, Jonah and the girls had lots of fun playing and even put on a little music show (with dinner, of course!) Thank you Holstein family!

It's back to school for all of us tomorrow. Have a super week! Keep all of our friends in your prayers, especially Hannah as she will have surgery on the 10th.

Friday, February 03, 2006

A great week


Kerstin enjoyed her first three days back at school. Today she didn't even need Mom to walk her to the front door. McKinsey and Kerstin helped Annie up at Cavett after school today. She goes back to work next week. Annie seems to be ready to get back at it. She misses her class and her teacher friends quite a bit. She is very happy to be going back only part time (in the afternoons while Kerstin is at school). Mrs. Adams did an awesome job the past few months and plans to continue to teach the fourth graders in the morning. What a blessing! Kerstin wasn't happy to find out that she doesn't get to go back to her favorite babysitter's house, but Mom sure is glad not to have to wake her up before 7:00 each day. School is wearing her out, and we are glad she can sleep in if she needs to. Thank you so much for all of your prayers, good thoughts, and encouraging messages. Know that we appreciate it all. Thanks for checking on us! Have a blessed weekend!

Wednesday, February 01, 2006

Back to School!

12:44 P.M. couldn't come soon enough today! After more than 3 months, Kerstin is thrilled to be back to school! Mrs. Swiatek brought special celebration treats for the whole class. The kids also made her a beautiful card. Annie got to spend a little while at school with Kerstin and her friends. They are such a caring group of kids! Kerstin felt a little bit like a celebrity today! She had a great day, and we are sure she will sleep well tonight! God has taken especially good care of our little girl!

Tuesday, January 31, 2006

Waffle Man Fund Raiser

The Cavett Elementary PTO put on a "Waffle Man" fund raiser for Kerstin tonight. It was a great time, and there was a huge turn out. It was really nice for Annie to see some of her students and fellow faculty members. Kerstin was only able to eat half her waffle, but she said the half she ate was pretty tasty. I think it was almost completely covered in whipped cream and strawberry syrup! We would like to say a big "Thank You" to all of the teachers, staff members, parents and students who helped with this event. The fourth graders did a fabulous job of keeping the tables cleaned and ready for the next dinner guests. Kerstin and McKinsey had an especially great time watching the many students perform during the talent show. Thanks also to everyone who came out to enjoy a delicious meal and premier entertainment. We feel richly blessed to have such wonderful support from our family, friends, and school community. Posted by Picasa

Haircut

Kerstin actually has some new hairs coming in, so we decided she better get those long "fly-away" hairs trimmed up. Posted by Picasa

Sunday, January 29, 2006

Just To Say Thanks

We have nothing extra-ordinary to post today. We just wanted to take an opportunity to say thanks. It seems like our world moves so fast, and there are so many life altering events that catch our attention. Sometimes it's easy to forget about other peoples' situations unless it is in front of you every day. We have been fortunate not to have that happen with Kerstin. It's four months after her diagnosis now, and we are still blessed to have people (some we have never met before) still reaching out to us with offers to help in any way needed. So, to all of you who read this blog (and to all who don't as well), we just wanted to make sure you know that all of your prayers, well wishes, and gifts are greatly appreciated.

As for Kerstin, she is loving life without her central line and seems to be adjusting to her new chemo meds just fine. She is also very excited to be going back to school this Wednesday.

Thanks for checking in on her. We hope you all have a blessed week.

Friday, January 27, 2006

Park Time!

It was absolutely gorgeous out this afternoon. McKinsey and Kerstin and friends played at the park for a while after school today. They claimed that almost everyone pushed faster on the Merry-Go-Round than I (Annie) could. I just didn't want them to get sick! They also created a new sport by going "Slide surfing" down the little slides.

Kerstin continues to feel really good. She has been taking one of her new meds for a couple of days now. She starts another new one tonight, so we are praying for the best! Kerstin is still looking forward to going to school again on Wednesday! Kerstin and Annie spent a little bit of time at Cavett today helping Annie get ready to go back to her teaching job on February 6th. Thanks for checking on us! Keep praying for our friend, Abby. You can visit her website by going to www.caringbridge.org/visit/abbybridgewater Posted by Picasa

Wednesday, January 25, 2006

No More Central Line!

We took Kerstin to Omaha this morning to the Oncology clinic. After some lab work, we got to go to the Pediatric surgery wing where the doctor removed her central line. Kerstin has been so excited to get rid of it, but was a bit worried about how it was going to get done. She did not realize that she was going to get a shot (she says 3 shots) to numb the area. The anticipation of the shot was much worse than the actual shot. It wasn't a very fun procedure for her, but she hung in there like a trooper! We are very proud of how tough she has been. We also met with Dr. G who outlined the plan for her Maintenance Therapy which began this evening. She will be taking a total of four different medications, all but one are in pill form. She will really be a pro at swallowing pills after this! We are hoping that the side effects of these drugs won't be as bad as the labels sound! She will get her blood checked every two weeks (at St. E's in Lincoln) and a check up by her doctor every 4 weeks (in Lincoln, too). This maintenance therapy will last for one year from today. We still will have to be careful and keep try to keep her from catching any major bugs, but we won't have to be as cautious as we were at first.
Grandpa Gordon and Grandma Joann were able to come to Lincoln for a little celebration. We went out to dinner and even had time to play a game of Fast Track. It was so nice to be able to spend some time with them. They hope to be able to stay longer next time.
Thanks for checking on us and for all of your encouraging messages! Posted by Picasa