Dr's Appointment

We're a couple of days behind, but Kerstin's doctor appointment on Thursday (4/19) went very well. Her blood counts are normal and Dr. G said she can stop taking her Bactrim a week early. That means Kerstin is completely med free!

Husker Red/White Game

Kerstin and her Dad attended the the Cornhusker Red/White scrimmage game on Saturday. She got to watch the game in style from one of the new sky-boxes on the north end of the stadium with some other Make-A-Wish children. The sky-box owner, who is still unknown to us, was very generous to donate it to Make-A-Wish for the game, complete with food and drink.

At half time Kerstin joined kids from the entire audience on the field for a "drug free" pledge put on by D.A.R.E..

Make-A-Wish Fashion Show

Last Friday night (March 30th) Kerstin and her sister were models in a Make-A-Wish fashion show. The show was organized and put on by two high school girls to raise money for an 8-year old girl who has been fighting brain cancer. The goal was to raise $3500 to send the girl on a Disney cruise. There were approximately 450 guests. Out of all the models, 11 were previous Make-A-Wish recipients including Kerstin. (Click here for the video.)

Pennies for Patients

On Friday (March 23rd) Kerstin's elementary school presented a representative from the Leukemia and Lymphoma Society a check for $3820.44 from the Pennies for Patients fund raising program. (The school's original goal was to raise $534.00.)

Fun in Arkansas

Just wanted to share a few fun pictures of what we have been up to during Spring Break in Arkansas. It was a nice warm day yesterday, so we had to get out on the lake. No trip would be complete without a ride on Grandpa's boat. Can you believe he let the girls drive??

Kayaking was an adventure. The water was icy cold, but is it possible to kayak without getting wet.







We were also able to spend an afternoon in Springdale, Arkansas at the Jones center. A very generous couple has provided a wonderful facility for families (free!!) complete with ice skating and a pool! What a fun afternoon! Kerstin loved the big yellow waterslide the best! We even got Grandpa Gene out on the ice with us. Thanks for checking on us! Have a blessed day!

American idol??

Kerstin and McKinsey have been having fun singing Hannah Montana songs on Grandpa Gene's Karaoke machine here in Arkansas. The girls and I (Annie) have been having a nice spring break with Grandma and Grandpa. The weather has been lovely. More photos to come!

Birthday Muffins

Kerstin woke up to her family singing happy birthday and a tray full of muffins this morning.

7th Birthday Party

Kerstin doesn't actually turn 7 until Feb 28th, but she had her birthday party today at Valentinaland (Valentino's Pizza). Kerstin and 10 of her friends (including her sister) opened presents, ate cake and ice cream, played games, and picked out prizes for about an hour and a half. Everyone had a real good time.

Dr's Visit

Kerstin had her first doctor's visit last week since she stopped meds. With the exception of a runny nose that has been hanging on for about three weeks, Dr. G said everything is looking good. Kerstin's ANC was down to 900, but Dr. G wasn't concerned about it. He felt it was probably due to her recent ear infections and head cold.

Gone for Good (We Pray)

While we feel saddened that we couldn't turn the unused portion of Kerstin medications over to some other patient that needs them, we were happy to hold a ceremonial flushing of the meds to mark the occasion.

"No More Meds" Party

We had a surprise party for Kerstin tonight to celebrate her finishing one year of daily maintenance medications. There was cake, balloons, soda, and lots of playing. We would have loved to have everyone attend who was a part of our lives over the past 15 months. We can not give enough thanks to God and all of you that prayed for Kerstin and our family.

The News We Have Been Waiting For...

Dr. G called today to give us the good news: Kerstin's final test results came back negative! Her last dose of maintenance chemo medication is January 24th. So what's next you ask? Kerstin will still have monthly clinic visits with Dr. G for a year (which will include blood draws). Other than that, it's just a matter of keeping a vigilant eye on her health. She will still be immune compromised for a couple of months while her immune system recovers from all the meds.

It feels good, and strange, to be taking the next step in her treatment. Thank you again for all the prayers and support you have given Kerstin and our family.

American Cancer Society Gala

Last night we attended the American Cancer Society's "Celebration of Hope" Gala. Kerstin was one of the special guests of the event. She and another leukemia survivor got to help out with an auction and a raffle. It was somewhat of a formal event and the whole family got to dress up "real fancy like". Kerstin has been fighting a cold and an ear infection, but was well enough to attend. When we told her that she probably wouldn't be able to go because she was sick, she was so disappointed we think it was sheer will power that she was able to suppress her coughing and runny nose for the evening. We all enjoyed the evening and the opportunity to help out another wonderful organization in the fight against cancer.

More Good News

We heard back from Dr. G yesterday that Kerstin's morphology and flow studies came back normal. Now we just have to wait until next week to get results back from two more studies and we can hopefully discontinue her medications. Keep those prayers coming :)

Good News!

Kerstin had her bone marrow biopsy today and the preliminary results came back "a-ok". The doctors are sending some samples to another lab for some other studies and tests. Those results should be back in 1-2 weeks. If those results come back "a-ok", she will be able to stop taking all of her current meds.

Kerstin got the royal treatment from the staff at Children's Hospital. Here's a picture of her getting a wagon ride up to the clinic after her procedure.

We hope this post finds everyone doing well. We continue to pray for all of those who are still fighting these horrible diseases, and for the families whose fight is over.

Dinosaurs

After being couped up for a couple of days from the snow storm, we went in to Woodland Park where they have a Dinosaur Resource Center. In this picture, Kerstin is watching one of the "dinosaur dudes" work on a dinosaur head.

Snow Angel

While we were in Colorado visiting Kerstin's grandparents over the holidays, we had about 27 inches of snow dumped on us. Kerstin took advantage and practiced her snow angel skills.

Kerstin and her family wishes everyone a joyous and healthy holiday season! Merry Christmas and Happy New Year!

Climbing the Walls (Literally)

Kerstin has been telling us how she can climb all the way to the top of the climbing wall at school. So Jeff went up one day to get photographic evidence. Kerstin had no problem scampering up the wall and didn't show an ounce of fear.

Busy Weekend

Kerstin kept very busy this weekend. Saturday morning she went to the Star City Parade in downtown Lincoln. She and some other Make-A-Wish families had reserved seats in the enclosed sidewalk that goes over O Street. What a view! After the parade it was off to the roller rink for some roller skating for the Girl Scout Cookie Kick-off. Yep - we now have 2 girls in Scouts. There is no photographic evidence, but rumor has it she can skate all by herself now.

Sunday afternoon Kerstin and her family attended the Make-A-Wish Christmas party. The girls had lots of fun playing all the games, making crafts, and meeting Santa and Mrs. Claus. Kerstin's burning question for Santa was, "How do the reindeer fly?" Santa had a brilliant magical answer.

We hope you all had a wonderful weekend also.